The G-Tube
Gavin’s family is truly grateful from the bottom of their hearts for any charitable help that you can offer. There will be vast medical expenses for experimental treatment for Gavin that will not be covered by their insurance. They are in the process of setting up future awareness and fundraising events and a donation fund on behalf of Gavin.
You can also make a donation directly to Gavin Marquez using PayPal Donate button below, but please keep in mind that this option is not tax-deductible at the moment.
The Suction & the Vest
The cough assist machine vest which is vital for the health of Gavin’s respiratory system. Each time there is a sign of Gavin having congestion, we simple use this machine to suction out "the gunk". As for the vest, will help with loosening all the gunk in Gavin’s respiratory system costs a whooping $15,000, it will do an effective job in keeping his lungs clear and will prevent any infections and the possibility of pneumonia. We were luckily blessed by Gary and Elizabeth Sheppard from Ontario, Canada who has heard about our situation and has graciously donated their late son’s vest, Noah Sheppard who past away from Sandoff’s Disease in September of 2009. We wanted to also thank the Roman Family of Connecticut for connecting us to the Sheppard family.
Tumble Form Chair
Gavin has a special chair (Tumble Form Chair) which keeps him in an upright position and now he is also using it for sleeping which has been great! He has been having a lot of secretion lately so we have been using the suction pump. The exclusive Tumble form Chair is coated to make them easy to wash and maintain. It has a seamless covering is which is washable, odor and stain resistant, and nontoxic. Gavin may not always want to sit in it, as he would prefer to be held and cradled. :)
The Gait Trainer
A family in San Diego has graciously donated their daughter’s gait trainer for Gavin to use at home. This special equipment is truly awesome and has been a blessing as it helps Gavin to walk around his environment and gain range of motion while being secured with straps and a harness. Ferd or myself would have to maneuver him from behind as we guide him around the house or in our backyard. Gavin usually gets a workout daily using the gait trainer for at least 15 minutes twice a day. Right when Gavin drags his feet, we know that he is fatigue. So far, he is keeping up with his gait trainer workout.