Past Events
Through the years we have had so much love and support from friends and family. We THANK YOU from the bottom of our hearts for all your time and effort in putting together events to continue to have hope for Gavin. Listed are just a few of our past events.
Miles of Madness for Gavin: Year 3
It’s been three years since I joined the battle against Tay-Sach’s disease. I vowed to raise awareness and to find a cure by starting “Miles of Madness for TSD Awareness” back in 2011.
Tay-Sach’s Disease (TSD) is a fatal genetic disorder that causes progressive destruction of the central nervous system resulting in the early death of children. Even with the best care, most children with TSD die early in childhood, usually by the age of 5 (source CTSF).
Yoga for Hope
Gavin's Yoga Fundraising Event last week was amazing! Janice Sherman from Yoga Gal led the event with an abundance of inspiration. There was so much love, support, and hope from the community, family and friends. We were also able to raise more awareness and $1000 for The Cure Tay-Sachs Foundation. We will all keep fighting as the TSD battle ain't over yet. Hang in there my son and to all brave warriors who keep fighting to breathe; and to those who have earned their wings, we will keep fighting in honor of you. Namaste!
Miles of Madness for Gavin: Year 2
Dear Friends,
A year ago, I started "Miles of Madness for TSD awareness,” where I matched your generous donations with mileage and gratification (1 mile per $1 donation) to help raise awareness and find a cure for Tay-Sachs disease. Inspired by your generosity and Gavin’s courage, I was able to finish a series of marathons, my first 50K ultra marathon, and a 50-mile bike ride. This year, I pledged to go for more.
Lock it in!
Origami Owl's mission statement is the heart of our company. We are united in the desire:
TO BE A FORCE FOR GOOD; TO LOVE, INSPIRE + MOTIVATE WOMEN OF ALL AGES TO REACH THEIR DREAM + EMPOWER THEM TO MAKE A DIFFERENCE IN THE LIVES OF OTHERS.
With your help and support, we would like to take the steps in HOPING to make a difference. We have teamed up with Hope For Gavin to help find the cure and spread awareness of Tay-Sach's disease.
Join us and Hope for Gavin as we open our Origami Owl store, www.nelma.origamiowl.com from February 5 to April 15, 2013, in which 100% of all proceeds will be donated to hopeforgavin.com.
Every Living Locket™ is custom designed with charms that tell the story of your life and represent the things you love. "You tell stories with words...we tell stories with jewelry."
Golf for Gavin: Year 2!
My story isn't as spectacular as many of my super triathlete friends. I'm an ordinary working guy trying to challenge my athletic abilities (or being nuts) but most importantly wanting to make a difference in someones life. I will be running a series of races: 25K trail races, marathons, an Ultra Marathon, and eventually, a triathlon. I've joined a few triathlon clubs to help me train for my races and volunteer on their various causes during my free time. However,none of those races compare to the battle that a little boy named Gavin is facing right now.
Miles of Madness: Year 1!
My story isn't as spectacular as many of my super triathlete friends. I'm an ordinary working guy trying to challenge my athletic abilities (or being nuts) but most importantly wanting to make a difference in someones life. I will be running a series of races: 25K trail races, marathons, an Ultra Marathon, and eventually, a triathlon. I've joined a few triathlon clubs to help me train for my races and volunteer on their various causes during my free time. However,none of those races compare to the battle that a little boy named Gavin is facing right now.
2012 Hope of Gavin Mini-Photo Session Event
Sat, Feb. 25, 2012 -Old Poway Park
*ALL Proceeds benefit Hope for Gavin & the Cure Tay-Sachs Foundation
2012 Carlsbad Marathon & Half- January
Time:6:00am
Carlsbad, CA
Help TEAM HOPE FOR GAVIN reach their PERSONAL GOAL for NTSAD.
GREAT JOB TEAM GAVIN!! (Matt Wilson, Ernie Leal, Jannelle & Ferd Marquez!!
2011 SOUTH COAST
BATTLE OF THE BANDS & MUSICIANS PLAY OFF!
Sun, October 9, 2011 Doors: 3:00 pm / Show: 5:00 pm
The Coach House | San Juan Capistrano, CA$12.00 (NET PROCEEDS WILL BE DONATED TO ‘Hope for Gavin.com”
Cupcake Corner SD presents!
For the ENTIRE MONTH of SEPTEMBER 2011, 10% OF ALL CUPCAKE & CAKE SALES will be donated to Hope for Gavin in honor of the 1st annualDay of Hope (Sept. 18, 2011) which will go directly towards the initiative for Gene Therapy for Tay Sachs Disease.
http://cupcakecornersd.blogspot.com
Tough Mudder- May 28, 2011
Show your support for TEAM HOPE FOR GAVIN, at the Tough Mudder event May 28th!! Although this is not a specific event for fundraising but an event the inspiration that Gavin gives to those who are fighting with him. This is a team challenge (not a race and we are not competing with each other) The main objective is to start as a team, complete each obstacle as a team and cross the finish line as a team.
1st Inaugural Golf for Gavin May 20, 2011
It's Go time for GOLF!!! Join us as we continue to race against time for Gavin and all the other children affected with this deadly disease called Tay Sach's. We hope you'll join us at our next fundraiser The 1st Inaugural "Hope for Gavin" Golf Tournament!! Save the date May 20, 2011 8am Tee time!!!
Bowl for Hope: Team Gavin - Nov. 20, 2010
As we continue to race against time for Gavin and all the other children affected with this deadly disease called Tay Sach's. We hope you'll join us at our next fundraiser at the Mira Mesa Bowling Alley in San Diego to help spread awareness! Please stay tuned for more details meanwhile get your game face on and get ready to have fun while helping Gavin and other children like him a chance at life! Save the date Nov. 20, 2010 6-9pm!!!
Scentsy Buddy & more for Gavin's cause - Sept. thru Nov. 13, 2010
Mary Jane Bravo, a Scentsy Independent Consultant stationed in North Carolina, wanted to know how she could help. So with a combined effort of 'what's gonna work? "TEAM WORK!" Arge, as she is commonly known and her BFF Mich, wanted to contribute to this great cause and raise more funds to find a cure for Gavin. A percentage of sales usually goes to the consultant, but from September thru November 13, 2010 (Gavin's birthday), ALL profits made will be donated to Gavin's cause. Choose from a wide variety of products like DIY warmers, or Travel tins, but we'd also like to feature the Scentsy Buddy! Purchase one or two for your little one(s) and let them know that their Scentsy Buddy helped support Gavin's cause! Send them as a gift or buy one for yourself! Either way, just knowing that you've purchased product for a great cause is a great feeling!
For more details pls. visit Arge's Scentsy page. (party ends Nov. 13 2010)
Pink Party 2010 + Hope for Gavin - Oct. 16, 2010
Our friend Heather, who helped coordinate Gavin’s fundraising event last month will be doing another event to help with Breast Cancer research known as “San Diego’s Pink Party” and is also teaming up to help with my son, Gavin’s cause. I would like to extend the invitation to you all for this big event which will be held on Saturday, Oct. 16, 2010 @ The House of Blues in downtown San Diego.
Read more
A Night of Hope for Gavin - Aug. 20, 2010
Gavin’s major fundraiser, “A Night of Hope for Gavin” was truly a success which took place on Friday, August 20th, 2010 at the Hensley’s Flying Elephant Pub & Grill located in Carlsbad, California. We were so overwhelmed and overjoyed with all the positive energy and support from all the people gathered at the venue who were all there to support Gavin. It was amazing to see lots of beautiful signs with Gavin’s picture on it and all the many people wearing “Hope for Gavin” T-shirts and bracelets. The crowd was in silence with tears and emotion as they saw an 8 minute video made by Don Rayner which captured a glimpse of what Tay Sachs Disease is and how we care for Gavin on a daily basis. The crowd was also moved by the pictures of Gavin and Bella and our family, that was photographed by my cousin’s husband, Patrick Bondoc. Thank you to ALL for your support!
Giving Back Christmas Card Drive
Joanna Redington from Illinois, Jannelle's cousin, sponsored a "Christmas Card Fundraising Drive" to support Gavin and The Cure Tay-Sachs Foundation. Pls. view some of the cards that were created from all over the world. This project raised $1100 – not bad for a quick project. Thank you to everybody who participated in our Christmas Card Drive for Gavin – to all those who donated their handmade cards, to all those who bought them, and to all those who made a monetary donation.
Social Awareness
In the weeks prior to the"Night of Hope" event, friends and family made it a point to help bring awareness to this deadly disease. This was done by changing profile pictures and posting links all over their walls with Gavin's picture. As much as there has been monetary support, educating the public one step at a time has grown slowly but surely. Most have never heard about the disease until now. News articles have been posted on various local news websites. Gavin is the first Filipino documented case of Tay-Sachs in San Diego.
Hearts for Hope Candy Bracelet Fundraiser
The CCMA (The Children's Conservatory for Music Arts) based in San Marcos, CA is pleased to present "Hearts for Hope" Candy Bracelets that are on sale for $1 a piece. All proceeds will go towards Gavin's care and cause.
If you are interested in buying these candy bracelets or for more information, please visit contact Beth Vinas-Rice at www.ccmusicarts.net