Day 3 @ NIH
Gavin had caught a sinus infection that was elevated on Tuesday, June 28, 2011 which eventually led to swelling of tissue by his airways...
Gavin is finally here at the NIH- Bethesda, Maryland
We’re finally here in Bethesda, Maryland for Gavin’s natural history study evaluation for Tay Sachs Disease at the NIH. The hopes of this...
Breaking News: HOPE in less than 15 months!!!
The Tay-Sachs Gene Therapy (TSGT) Consortium clinical trials could begin as early as September 2012 – just 15 months away!! The...
Golf for Gavin was a huge Success!!!
Gavin’s 1st golf tournament held on a beautiful morning and afternoon on Friday, May 20th 2011 at the Carlton Oaks Golf Club in Santee,...
24 Hour EEG for Gavin
Last week Thursday, we all went to LA to do Gavin’s 24 Hour EEG to accurately detect any seizure activity in his brain. He was closely...
