We are off to St. Petersberg, Florida with the whole family from April 6 to the 11th as we attend our first Tay-Sachs Disease Conference sponsored by NTSAD in the hopes of getting closer to the cure. We are truly excited as we will be meeting families with children who are like Gavin as well as scientists and researchers from the Gene Therapy Consortium. Thank you to all who continue to think and pray for Gavin and our family. I will surely posts updates about our trip soon. Take care.
