Day 17 @ Children’s Hospital in DC

Gavin is still in the PICU. He continues to be on 2 L of oxygen and his heart rate is much better than it was earlier. Because he continues to have these episodes of apnea, the attending physician has ordered an EEG which started since Wednesday morning. For those of you who don’t know, an EEG records the electrical activity of your brain via electrodes that are affixed to your scalp. The results should be in on Thursday. Gavin will also undergo a sleep study while he is still here at Children’s to make sure that he does not have frequent apnea while asleep and desaturated oxygen levels at the same time. Yesterday around 6 pm, Dr. W (Gavin’s SD pulmonologist) came by to see him which was really nice and comforting. It was such a bonus for us to have Dr. W visit Gavin in the PICU so at least he is on the same page with the medical team in DC thus making the medical transition back to San Diego as smooth as possible. It’s been 2 weeks since Gavin has been in the PICU @ Children’s and nearly 3 weeks since we have left SD. Looking forward to coming home soon. Thank you for checking in. More updates to come.