The Hope for a Cure is Getting Closer
On Sept, 18, 2011, The National Tay-Sachs & Allied Diseases Organization will launch the first annual “Day of Hope” campaign. How Does...
Gavin is finally home!
After a long and crazy journey from Maryland, Washington DC and finally back to San Diego, Gavin is finally finally home. He was...
Day 2 @ The NIH
Gavin had his vision screening test yesterday with the opthamologist. It was kind of an emotional experience as he said Gavin can...
Visiting Gavin
Gavin’s God sisters visiting and sending their love last night..
Gavin @ Children’s Hospital- San Diego (Last day here hopefully)
Gavin was transferred from the PICU to the pulmonary unit on Sunday afternoon where nurses are specifically trained for respiratory...
Gavin is finally back home!!!
The flight via medical jet was an experience, but nonetheless the medical transport team did a fantastic job in ensuring our safe return...
Gavin @ Children’s Hospital-San Diego Update!
Gavin is still in the PICU. Children’s Hospital in SD is indeed different from the one in DC; I feel that they are more stricter here...
Update from Children’s in DC
Gavin just got re-intubated a few minutes ago and all went well. He is heavily sedated and his stats look great. We are just waiting for...
Update: Leaving Washington DC
Gavin and I are finally boarding-SD here we come!!!
Day 23 @ Children’s Hospital in DC
After a very long and HEATED discussion with all participating medical team members at the meeting Tuesday afternoon, Ferd and I were...
