Day 20-22 @ Children’s Hospital in DC
Wow, we’ve been here for almost a month and while our trip did not turn out as planned, all we could do is pray and hope for the best and...
Day 18 & 19 @ Children’s Hospital in DC
Looks like we are still going to be here for another week. Gavin has been doing great as he is breathing on his own with no oxygen...
Day 17 @ Children’s Hospital in DC
Gavin is still in the PICU. He continues to be on 2 L of oxygen and his heart rate is much better than it was earlier. Because he...
Day 14 @ children’s hospital DC
Gavin is doing much better compared to last week post extubation. His o2 stats are great with 2 L of oxygen assistance which is very...
Day 15 & 16 @ Children’s Hospital in DC
Gavin is still in the PICU under close monitoring. He was down to 1 L of oxygen and then to room air (breathing on his own) and he was...
Day 13 @ Children’s Hospital in DC
Gavin continues to show good progress post extubation. He is receiving very little assistance of oxygen and is doing a majority of the...
Day 12 @ Children’s Hospital in DC
Prayers were surely answered!!! Praise God!!! Thank you everyone for praying for Gavin and for checking up on us. The extubation went...
Day 11 @ Children’s Hospital in DC
The meeting with the NIH, Children’s Hospital and SD Kaiser medical team went well. It was a bit intimidating and emotional, but Ferd and...
Day 10 @ Children’s Hospital in DC
It was a long day at the hospital. Our good friends, Joan and Wela from Virginia came by last night to see Gavin and to take us out for a...
Day 9 @ Children’s Hospital in DC
It’s getting very complicated right now. The ENT and ICU team have decided to hold off on extubating Gavin until Friday to finish the...
