GAVIN UPDATES | hopeforgavin

Day 8 @ Children’s hospital in DC

Gavin is back at the PICU heavily sedated because kids who have a breathing tube must be very still. His o2 stats and heart rate look...

Gavin is doing great today. They were supposed to remove his breathing tube (extubate) yesterday, but the ENT doctors would like to make...

Gavin was sent to the OR this morning to be extubated (to remove the breathing tube) and he did well, but when he returned to the PICU,...

Gavin is showing good signs of improvement. There is evidence of good airway leakage which is a great sign that the swelling of tissues...

Gavin is now at Children’s Hospital in DC. He is in the PICU under critical care. He is heavily sedated to make sure that his breathing...

Gavin had caught a sinus infection that was elevated on Tuesday, June 28, 2011 which eventually led to swelling of tissue by his airways...

We’re finally here in Bethesda, Maryland for Gavin’s natural history study evaluation for Tay Sachs Disease at the NIH. The hopes of this...

The Tay-Sachs Gene Therapy (TSGT) Consortium clinical trials could begin as early as September 2012 – just 15 months away!! The...

Gavin’s 1st golf tournament held on a beautiful morning and afternoon on Friday, May 20th 2011 at the Carlton Oaks Golf Club in Santee,...

Last week Thursday, we all went to LA to do Gavin’s 24 Hour EEG to accurately detect any seizure activity in his brain. He was closely...