Great News for Gavin from the NIH
I just wanted to share the exciting news that the NIH (National Institute of Health) has selected Gavin to do the Natural History...
The Pulmonologist Visit
A few days after Gavin was in the ER, we had an appointment scheduled to see our pulmonologist (which I had booked a couple weeks prior)...
TAY-SACHS GENE THERAPY CONSORTIUM UPDATE
MOVING CLOSER TO A CURE The Tay-Sachs Gene Therapy Consortium is working diligently to begin human clinical trials in 2013! It is a...
Gavin Gets a New Recliner
Because Gavin is just getting longer every minute, it was time for us to get him a nice and comfy chair for him to relax, eat, and nap...
Off We Go to Boston
On March 30, 2011 we head off to Boston, Massachusetts to attend our second Tay Sachs Disease Conference. We look forward to connecting...
Gavin Gets Botox
On February 15, 2011 Gavin got his first dose of Botox injected into his calves to help relax the muscles. Kids with TSD eventually get...
Orlando, Florida Here We Are!!!!!
On Dec. 16, 2010 we went off to Orlando, FL to take Gavin and Audrey to Disney World for a week long vacation courtesy of the Make-a-Wish...
Gavin Is Finally Home!!!
After almost 2 weeks of being at the hospital, Gavin was finally discharged last week Wednesday, Nov. 24, 2010 just in time for...
Bowl for Hope: Team Gavin was a huge SUCCESS!!!
I cannot stress enough how grateful we are for our wonderful friends and family for putting together such an amazing family fundraiser...
Day 6… still at the hosptial
It’s day 6 and we are still in the hospital. Gavin is off of morphine and is tolerating the feedings in his gtube. He is still a bit sore...
