

Gavin celebrates his birthday at the hospital
Hi all! Gavin was admitted to the hospital at Kaiser Medical Center on thursday night 11/11/10 for an emergency surgery for his gtube...
Gavin Loves His Nurses
Because of Gavin’s critical disability, we were eligible for nursing assistance. Since June, we have had a flow of different nurses come...
A "Night of Hope for Gavin" was truly a success!!!
Gavin’s major fundraiser, “A Night of Hope for Gavin” was truly a success which took place on Friday, August 20th, 2010 at the Hensley’s...
We now have the vest thank God to the Sheppard Family
Our pulmonologist suggested that the only way we can move forward in obtaining a vest for Gavin (a vest which will help with loosening...
Updates from our Tay Sachs Disease Conference Part 2
Hello all, I know it has been so long overdue since I have posted an update let alone an update about our experience at the Tay Sachs...
Gavin @ the ER on 4/21/10
I took Gavin to the ER on Wednesday, April 21, 2010 as his congestions were out of control. That day, when I picked him up at day care, I...
Updates from our Tay-Sachs Disease Conference- Part 1
We finally made it back home safe from Florida last week Sunday, Apr 11. Again, I cannot stress enough how glad we are to have attended...
Day 2 of our Tay-Sachs Conference in St. Petersburg, Florida
Hello all! Just wanted to send a quick update about our Tay-Sachs conference experience up-to-date. First of, St. Petersburg, Florida is...
Off to St. Petersberg, Florida
We are off to St. Petersberg, Florida with the whole family from April 6 to the 11th as we attend our first Tay-Sachs Disease Conference...
It has been a year since the diagnosis
Hello! I apologize for not posting any recent updates on Gavin’s blog as it has been very hectic these past few weeks. Ferd has been...